Moebius Syndrome Foundation


Individual with Moebius syndrome

Please confirm - I am: *	An adult with Moebius syndrome A parent of a child with Moebius syndrome A friend or family member of someone with Moebius Syndrome A professional working with Moebius syndrome

First Name *
Last Name *
Birth Date	// (mm/dd/yyyy)
Gender

First and last name of spouse / partner
Last name spouse / partner

Phone *
Address 1 *
Address 2
City *
State/Province
State, Province, and Territory Codes ( Outside of USA or Canada)
Zip *
Zip Suffix
Country

Email *
Email 2

What is your preferred contact method? *

Highest Degree of Education *	Less than high school High school / GED Trade school Some college 2 year degree 4 year degree Masters degree Doctoral degree

What is your profession?

Are you a twin? *

How did you learn about the MSF? *

A critical part of the Foundation's Mission is to learn as much as possible about our members so we can best meet their needs. Please assist us by answering the following confidential questions.

Were you born with facial weakness? *	Yes No

Are you UNABLE to move one or both eyes away from your nose toward your ears laterally? *	Yes No

Check all that you have experienced *	Eye issues Dental issues Feeding issues Hearing loss Limb difference Speech issues Sleep issues Social/emotional issues (depression/anxiety) Vision impairment Complex medical needs Poland syndrome Intellectual disabilities Autism Spectrum Disorder

Are you interested in participating in research to advance our understanding of Moebius syndrome? *

Would you like to receive our bi-annual newsletter? *

Have you ever attended a MSF conference? *

Would like to volunteer at a future conference? *

Would you like to connect with others? Check all that apply *	An individual with Moebius syndrome in my age range An adult with Moebius syndrome in my geographic area A professional with Moebius syndrome in a specific field (Tell us more in the "other" box below) Not at this time
Other, please specify


I would like more information about:	Dental issues Eye Issues Feeding issues Hearing issues Limb difference Sleep issues Speech issues Social/emotional issues(depression/anxiety/social issues) Vision impairment Poland syndrome Intellectual disabilities Autism spectrum disorder

How can we further assist you?

Moebius Syndrome Foundation Privacy Policy
Yes, I would like to receive communications from Moebius Syndrome Foundation by email.
Yes, I would like to receive communications from Moebius Syndrome Foundation by phone.
Yes, I would like to receive communications from Moebius Syndrome Foundation by mail.
Yes, I would like to receive text messages from Moebius Syndrome Foundation.
What's the best number for us to text you? *

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Individual with Moebius syndrome

A critical part of the Foundation's Mission is to learn as much as possible about our members so we can best meet their needs. Please assist us by answering the following confidential questions.